LTC = Long-Term Care
OOP = Out-of-Pocket
QALY = Quality-Adjusted Life Year
SSDI = Social Security Disability Insurance
SSI = Supplemental Security Income
SMR = Standardized Mortality Ratio
Being away from work because of illness or other reasons. In this document, it refers to the cost of workdays lost when a caregiver misses work to care for someone with schizophrenia.
Living in a regular home or apartment in the community, rather than in a nursing home, group home, jail, or other supervised setting. The document uses this to describe adults with schizophrenia who live independently.
The network of jails, prisons, probation offices, and other institutions responsible for holding and supervising people who have been convicted of or charged with crimes.
In economics, a dollar today is worth more than a dollar in the future. A discount rate is the percentage used to reduce the value of future money or future years of life to what they are worth in today’s terms. Discounted years lost means years of life lost, adjusted to reflect present-day value.
In data visualization, the ability to click on a summary number to see the more detailed data underneath it. For example, clicking on Total Healthcare Costs might drill down to show inpatient, outpatient, and prescription costs separately.
The amount above what would normally be expected. For example, excess mortality is the number of deaths beyond what would occur if people with schizophrenia had the same death rate as the general population.
Being held in a jail or prison. Incarceration rate is the percentage of a population that is imprisoned at a given time.
A patient who is admitted to and stays overnight in a hospital while receiving care. Inpatient costs are the costs of that kind of hospital stay.
Any interaction with law enforcement or the courts, including arrests, hearings, or supervision by probation or parole — not just incarceration.
Ongoing assistance for people who need help with daily activities over an extended period due to illness, disability, or aging. This often takes place in nursing facilities. It is distinct from short-term hospital care.
The state of being sick or having a disease. In this document, it refers to the health burdens that come with having schizophrenia — not death itself, but the ongoing harm to a person’s health and quality of life.
When used together, this phrase covers the full range of health harm: both the suffering that comes from living with a condition (morbidity) and the deaths it causes (mortality).
Death, or the rate at which people die. When this document talks about “excess mortality,” it means more deaths than what would normally be expected in a group of people that size.
A cost that is subtracted from a total because it represents money that flows back into the system or is already counted elsewhere. For example, disability benefit payments are counted as an offset because they are a transfer of money rather than a new economic loss.
Costs that individuals pay themselves, rather than what insurance or government programs cover. For caregivers, this includes personal money spent on care-related expenses.
Medical care where the patient is treated but does not stay overnight in a hospital. Examples include a regular doctor visit or a same-day procedure.
Per person. A per capita cost divides the total cost by the number of people in the group, giving an average cost per individual.
The study of the costs and benefits of medicines and medical treatments. This field helps researchers and policymakers decide if a treatment is worth its price.
The minimum annual income the federal government defines as enough to cover basic needs. People earning below this level are considered to be living in poverty. This document uses it as a benchmark for estimating the economic harm of certain outcomes.
The current worth of a future sum of money or benefit, calculated using a discount rate. For example, the Present Value of Lifetime Costs estimates what all future costs — spread over a lifetime — are worth right now.
Being physically present at work but working at reduced effectiveness because of stress, illness, or caregiving responsibilities. This is a hidden cost — the person shows up, but their output is lower.
How common something is in a population at a given time. The prevalence rate of schizophrenia is the percentage of adults who have the condition.
The total economic cost of reduced work output. This document combines absenteeism (missed days) and presenteeism (reduced output while present) to calculate total productivity loss for caregivers.
A way of measuring both the length and quality of life gained from a medical treatment. One QALY equals one year of perfect health. Less-than-perfect health (like living with schizophrenia) is worth less than one QALY per year. This is used to compare the value of different treatments.
A type of user interface control that lets a user select one option from a set (like a toggle between Total and Per Person views). Referenced in the document as a way users will filter the dashboard.
Taking action to fix or reduce a problem. In the housing and homelessness context here, homeless remediation costs are the costs of programs and services that help address or reduce homelessness.
A federal program that pays monthly benefits to people who cannot work due to a disability and who have a sufficient work history. Benefits are based on prior earnings.
A federal program that pays monthly benefits to people with disabilities, blindness, or who are 65 and older and have very limited income and resources. Unlike SSDI, SSI does not require a prior work history.
A serious, long-term brain disorder that affects how a person thinks, feels, and behaves. People with schizophrenia may hear voices, have trouble telling what is real from what is not, and struggle to think clearly or care for themselves.
A number that compares the death rate of one group (people with schizophrenia) to the death rate of the general population. A ratio above 1.0 means the group dies sooner or more often than the general population.
A type of supervised housing — such as group homes, board and care homes, or adult residential facilities — where residents receive some level of support or oversight. These are not nursing homes, but they are more supervised than living on one’s own.
Added on top of something else to make it more complete. In Supplemental Security Income, it means this income is meant to top up or fill in gaps for people with very little money.
A software tool used to create interactive charts, dashboards, and data visualizations. This document references it as the platform where this data will be displayed.
The raw total of costs or years of life without any adjustment for time. The opposite of discounted.
Having no stable place to live; another word for homeless, sometimes preferred in policy and research writing.
The organizational structure used to group systems, measures, assumptions, and evidence sources within $COPE 360.
The portion of total societal impact attributed to a specific system, measure, or impact area.
A visualization mode allowing side-by-side evaluation across states, systems, categories, or measures.
A tool designed to support planning, policy discussion, and evidence exploration rather than clinical guidance.
A major impact area such as Healthcare, Caregiving, Housing, Employment, JusticeSystem Involvement, or Disability Systems.
The ability to move from summary information into detailed measures, categories, or visualizations.
A grouping of related measures representing a specific area of societal impact.
A modeled value representing societal effects associated with schizophrenia.
Impacts associated with hospitalization, homelessness, housing transitions, justice involvement, or employment disruption.
An individual measure displayed within $COPE 360.
Platform section used to explore aggregate national impacts.
Average value calculated by dividing total impact by the affected population.
Reduced productivity while remaining at work because of caregiving or illness burden.
Platform section used to compare impacts across states.
Level beneath a major category used to organize related metrics.
System → Subcategory → Metric → Visualization.
Short explanatory text displayed to help interpret measures.
Ability to download charts and graphics for reports or presentations.
Level beneath a major category used to organize related metrics.
