The ground floor of advocacy is having what you need to care for yourself or your loved one. Ground floor advocacy includes:
- Understanding a psychotic illness, how it happens, and what to expect
- Using the right verbiage and taking our pledge to change language about brain health
- Learning best practices for communicating with your loved one during psychosis spectrum disorders/delusion (L.E.A.P.)
- Learning how to communicate with a clinician, crisis care team, or police officer during a crisis
- Knowing how to navigate the legal system
- Discovering legal documents for juvenile patients, such as an IEP in school
- Using legal documents for adult patients to obtain the information you need as a caregiver, communicating issues to a treatment team, and making medical decisions for the patient when appropriate
- Finding and using resources for additional legal help
- Understanding what services are available and how to access them
- Learning how to appeal when private insurance reduces or refuses coverage
- Knowing what to do if the hospital is prematurely releasing a loved one from the hospital
- Understanding how to get SSI and SSDI benefits for your loved one (SOAR application)
- Assembling a “Red Book” to be used in times of crisis that keeps all documents, pictures, copies of health and symptom, a safety plan, etc.
- Learning how to create an family treatment team and how to work with an medical treatment team
- Knowing how to access caregiver benefits in your state
- Continuing your education through free conferences and seminars at teaching institutions and hospitals
- Using social media to share initiatives