“I’m Diagnosed, Now What?” Toolkit

If you have been diagnosed with schizophrenia or a related disorder, there is hope. Many people with schizophrenia are capable of making great strides in recovery and finding a place in this world.

Please be aware that this illness is not your fault. Schizophrenia is not the result of a character weakness or personality defect. Rather, according to the best scientific information available, schizophrenia is a genetically-influenced, neurological brain illness. Many people with schizophrenia see improvement thanks to medical treatment, peer-based support, and new scientific research.

To help in this process, many people who are diagnosed have shared helpful questions ask yourself:

How long did you take your first medication?
How has your treatment regimen changed over time?
Were there times you stopped taking your medication without telling clinicians?  If so, why?
Do you ever think about asking your doctor to change your current medication? If so, why?
Have you talked to your healthcare team about changing medications?
Have you experienced relapses?
How many relapses do you think you have had?
If you have experienced a relapse, were you taking medication at the time?
Have your doctors ever discussed the option of long-acting injectables?
Do you prefer getting long-acting injections over taking pills? Why or why not?
Do your doctors and nurses offer support or resources to help you with work, living situations, or social interactions?
Do you feel like you have a partnership with your treatment team? Why or why not?
Do you ever question whether you need to take medication or if you even have an illness that needs treatment?

Help for People with Schizophrenia and Related Disorders

It’s important to record details and specifics about symptoms, medication, moods, and more. That’s why we co-created SCZ Health Storylines^TM, a digital health tool designed to better manage and monitor schizophrenia and related disorders.

Choose what you want to monitor and see all the information you need to help yourself or a loved one living with schizophrenia, psychosis spectrum disorders, or a related illness. All you have to do is tap an icon, swipe a screen, and fill in the rest of the story for yourself or your loved one.

SCZ Health Storylines^TM lets you:

Record important questions for your clinician

Monitor symptoms, moods, and daily routines

Remember to take medications on time

Remember clinical appointments

Journal about your daily life and experiences

Learn more about you or your loved one’s illness by keeping records of patterns and behaviors

Know when to call your healthcare provider by noticing important signs and symptoms

Sync data from other health and fitness apps

Connect with your support network

How to Access SCZ Health Storylines^TM

The mobile app is FREE for all users on iOS and Android devices. There is also a web version available through the browser of any desktop computer or mobile device.

Download the App

To install this free app, go to the Apple App Store or Google Play Store, and search for “Health Storylines.”

Click “Install.”

Once installed, click on the SCZ Health Storylines^TM app.

Select “Sign Up” to access personalized tools just for you. You will need to enter registration information and agree to the Privacy Policy and Terms of Use to begin using SCZ Health Storylines^TM.

Available on the web

To use the web version on your desktop or mobile device, go here.

The SCZ Health Storylines™ app was developed in partnership with Schizophrenia & Psychosis Action Alliance and is powered by the Health Storylines™ platform from Self Care Catalysts Inc.

This app is not meant to replace a clinician or give medical feedback of any kind. It is a tool to help document self-care activities for better care coordination and communication. No one will see your results unless you share it with them.

Any data collected from SCZ Health Storylines™ is de-identified and aggregated to eliminate personal identification so it can be made available to partners and third parties to better understand the patient experience and improve treatment options and health outcomes.